About
My name is Kathy Alter. I’m a Web content editor/News director at GazetteOnline in Cedar Rapids, Iowa.
After over a decade as a Type II diabetic, my kidneys gave up the ghost early last year. I began hemodialysis March 17 and by June had decided I wanted to try for a kidney transplant while my health — for an End Stage Renal Disease patient — was still relatively good.
This is quite a trip and quite a learning experience. I hope to let readers into my new world and maybe help other kidney patients find some answers to common problems.
To start at the beginning, read from the bottom up.
After seeing you on KCRG. I wanted to read your blog. As a diabetic I was curious to see what led you to your diagnosis of kidney disease, the symptoms you had. Maybe I missed this, but I didn’t see this information. I can always look it up on the internet but was looking for a first person perspective. Hoping you might include this sometime in your blog. Sincerely: Deb
Deb –
I will tell more about the diabetes and diagnosis. The blog is just beginning and I find I have a lot to say. I also hope to keep the blog going for people who have questions, concerns, need help in finding solutions.
Dear Kathy, fellow Northern kidney failure/dialysis adventurer! I am 57yrs old and live in Minneapolis, I inherited PKD and started on dialysis in June 06. I started my testing at the U of Minnesota….but changed over to HCMC this fall. My sister, a friend, and my son in law came with me to my first meeting with them, they asked if there were any “live donors” and all three said they wanted to be tested. Seven days later…it was found that my friend/neighbor and my son in law were matches! I have been in SHOCK ever since! My son in law is NOT a consideration as my daughter/his wife has PKD also and each of their four children have a 50% of inheriting it also. But here I am with this amazing friend who wants to give me my life back! I have been told I also need to lose weight, but the surgeon has decided to go ahead with the surgery, I am leaving the dates up to my friend and the hospital…they are looking at Jan or Feb, as my friend has started the intentsive testing for the donor.
I feel a “connection” to you, and find that we are experiencing much of the same, this is a good thing that you are doing….networking, easing the mind, when sharing what you are going thru. Thank you.
Most sincerely, Nancie
Nancie –
and 3 hours past breakfast, I’m a little hungry, but managing. I think I’ll end up baring all here by keeping my food journal in the pages area…might as well be accountable to the entire virtual universe, eh? 
Thanks for commenting. You’re right, this blog has been good for me and, I hope, other kidney patients reading it. The specialist said things might be different if I had a live donor but since that is not an option at the moment, the weight loss will take priority. I started this morning (Wednesday, November 2
Kathy:
Thank you for your site There is much we have in common. I lost my kidneys in March 2007 as well to a sudden rare auto immune disease; Goodpastures Syndrome.The chemotherapy used to suppress my Immune system permanantly damaged my heart muscle leaving me with conjestive heart failure. Fortunately dialysis is a blessing as it removes excess fluid so I have had few symptoms.
I am 58 and was very active before Dialysis. I too believe consciencely or unconsciencely depression is an ongoing battle as we adjust to change and the lifeline of dialysis treatment. The limitations and adjustments to treatment are significant. It has been my experience that a dialysis unit is a grim place to spend 12 hours a week. Most patients are very sick, ambulatory and assited by hired ambulances. Many are very angry which often results in some lively conflicts between people tethered to recliners. The nurses actually had to put up a folding screen to stop a screaming match between a young man with HIV and an elderly woman.
I for one, am blessed to have a very supportive husband, insurance and relatively good health. I often have to remind myself of these assets. ‘
The diet restrictions are another departure from life as it was and important to follow. I have seen the results of broken bones and other complications in patients at my Los Angeles Dialysis center. That has been an incentive to adhere carefully to the renal diet. Yet it amazes me to watch patients drink a quart of orange juice while in treatment!
I am currenly being evaluated by the Transplant Team at Cedars Sinai. It is a considerable amount of work. I try not to have great expectations as my living donors may not be a match. However, I am grateful for the opportunity as well as the activity in involves.
I am somewhat concerned about the weight loss I have experienced since March. I eat often but my plummeting weight nears 100 lbs. I haven’t had any answers to this delimna.
Thank you for your site and your willingness to share your experience.
rejoice,
Renee
Renee –
Thanks for commenting. I think I missed seeing your comments earlier. I agree that a dialysis unit can be depressing and as much as they are a ward setup, interaction among patients is certainly not promoted. It’s amazing how isolated people can be in a crowded room.
Kathy, I wanted to say I wish you the best. Your blog is a great resource. I really feel you are doing a great service to others via this blog. Thank you.
P.S. I am sure you already have a great dialysis center, however if you want more information check out my website (I hope it helps).